Thursday, 31 May 2018

The Loss of a Sibling, Suddenly but Peacefully - RIP

My brother Andrew (Andy) Ratkai, passed away Wednesday, May 23rd, suddenly but peacefully in his sleep from a heart attack due to diabetic complications.  He was 63.  I am submitting this post as soon as was possible and continue to thank you for your prayers during this difficult time.  Somehow I was able to include a photo of Andy's motorcycle but not one of him!  Being the consummate photographer he'd just shake his head at me.  I will post one when I can figure it out, techno peasant I continue to be.

What I was trying to avoid, unsuccessfully, was an acute physical health crisis during this time, which ended up happening this past Sunday night about 3 in the morning.  From being woken up with off the charts pain in my abdomen and back, nausea (but not the flu kind), clammy cold sweats all to the point of getting a same day appointment with my doctor, off to KGH for further checking.  My own suspicion of stress induced physical pain was likely the best explanation but took me from being fully functional for the past two weeks to flat on my back most of this week.  Hence the delay in writing.

What started as a lovely day weather wise, a good workout at the pool and a little rest on the couch turned upside down when a knock came at the door about 3 p.m.  A police officer was standing on the porch with Mike ushering him inside.  Staring into the officer's eyes, I could only wonder what I had done.  Had I run a red light on the way home from the pool?  Only when he said they'd received a call from the North Bay Police did I know something was drastically wrong.  Before that thought was even complete, he stated my brother had passed away.  With a deer in the headlights look all I could say was I didn't know what to say or what to do.

We were left with a number to call the police in North Bay, learned a little more about what happened.  After a while received a call from the coroner to learn the cause of death, after which, we decided rather than sit and look at one another, we contacted our kids then headed to Pembroke to spend the night with Kirk and Lynda (brother in law on the Dobbs side).  They were as gracious as always and saw us off Thursday morning to start the process of picking up the pieces, making decisions and gathering information.

You may or may not know, my brother and I were each other's only next of kin, first generation Canadian having been raised by our Dad from ages 6 and 5, on his own, never having remarried.  We grew up in Port Colborne on the shores of Lake Erie living life as typical kids in the '60's.  The odd dynamic of course was living with a single parent, our Dad.  No our mother did not pass away.  She had the foresight to leave us with our Dad as she went on to find herself as an artist.  The stability needed by young children would better be provided leaving us in his care.  Life carried on, we ended up in the same grade and, after a stint in high school, Andrew quit at 18 to join the military. I've written about his many accomplishments despite not completing secondary school until a mature student.    Andrew had married but divorced in 2003 without children and was on his own having retired from the military for the second time in 2015.  We'd lived apart for more than 45 years, him moving with postings as assigned and me with work at the bank, so our paths would not cross for many months at a time.

Once Mike came into my life and met my brother, they became fast friends, either emailing or talking on the phone at least once a week.  It was such a blessing to see Mike enjoying interaction with my larger than life, slightly older brother.  They shared a sense of humour I'll never understand and could talk for ages about anything mechanical, especially when it came to motorcycles.  At our wedding, I had our mutual friend Stephanie and my son Matt stand up for me and Mike had his brother Pat and my brother Andrew, stand up for him.  All of our children walked down the aisle with us creating a perfect family affair.

Andrew had lived in North Bay for over 15 years and made friends and acquaintances all along the way.  He retired from the Reserves at 60 in 2015 but had long before declared North Bay as his home.
It was wonderful to see so many people from the community, the military and the motorcycle crowd join together to pay their respects.  We got to learn many things about Andrew he had never shared.  He was known as a kind, sharing, generous person (we knew that part), willingly helping wherever needed, volunteering his time and expertise not only when asked, but when he detected someone could use help.  He became 'security in the wings' for the staff who worked at the Variety Store/Diner two blocks from his home.  Pinehill Variety has many daily patrons, Andrew included, who became their self appointed security guard on many late evenings.  They may not even have been totally aware of his role.

Pinehill is a quaint, 'corner store' in the middle of a residential neighbourhood, totally nostalgic in its packed shelves, close quarters and, best of all, an L shaped lunch counter with two two seater tables and one six seater.  The regulars come by at their pre-established times, often just for morning coffee or that plus breakfast.  Andrew could often be found seated in the corner in the mornings but definitely every day at 3 p.m. for his cup of tea.  He never did drink coffee.  We've frequented Pinehill on every visit to North Bay, watching the antics and bantering between staff and customers.  It was like being in an oldies sitcom straight from the '60's.

Something we sort of knew but not to the extent was my brother's attention to detail.  No wonder we didn't see eye to eye on many things.  He was detail oriented to the nth degree whereas I have always looked at the big picture with a view to figuring things out as we go.  He worked all winter on disassembling a Drifter 800 motorcycle he'd bought last October and putting it back together one piece at a time, totally changing its look.  He had a three ring binder at least 3 inches thick with every page in page protectors, creating an entire handbook for the bike.  All he'd had left to do was put the chain on with plans to ride it, I believe, in this year's Ride for Dad in North Bay coming up June 16th.  As it turned out no one he knew had the tool he needed so he ordered it online.  It arrived the day his neighbour found him.  Mike ended up finishing the job and rode both of Andrew's motorcycles to the funeral home for the Celebration of Life.

Since he didn't have a garage, was becoming almost crippled with arthritic knees and ankles, my brother did the only sane thing anyone living on their own would do.  He took the doors off his house, got a ramp and stored them both in the living room keeping him occupied for hundreds of hours as he tinkered away.  The final look of the bike named 'Raven', is that of the Steampunk genre.  Yes, I had to look it up online too.  Fascinating combination of the start of the Industrial Revolution and Science Fiction.  One of those things that makes you go 'Hmmmm'.  Below is a photo of 'Raven' .


On the day of the Celebration of Life, Mike was cleaning both 'Red' and 'Raven' but as he was cleaning Red, the one with spoked wheels, he got frustrated (rare for Mike) and thought to himself, 'this is why I don't have a bike with spokes', they're too hard to clean!  Within minutes, the garden hose from next door burst open with water shooting as high as the roof and coming down squarely onto Mike and the bike.  All we could do was laugh as we believe it was Andy's way of letting Mike know what he thought!

While we found a self penned obituary the day following the Celebration of Life, we'd already had the reception only to find he didn't want a visitation as he was afraid no one would come.  I couldn't help but republish Andy's obituary using his words with some clarification.  As it turned out dozens and dozens of friends from North Bay, the military and motorcycle communities with a couple even driving from Indiana and another from Sault Ste. Marie.  He sure would have been surprised by the people who came to pay their respects.

A key element of the day was to avoid any formalities at all.  When he retired from the military he hadn't wanted any sort of going away fete, and so things were carefully arranged to put the full focus on friends to be able to come together, share stories, pay their respects and bring closure in their own hearts.

A couple of retired military friends were seated in the refreshment room leafing through my brother's scrap book.  They laughed saying they'd planned to leave an hour earlier but were fascinated with the contents of Andy's book.  It brought back fond memories for both of them which would made Andrew happy.   I found it a great idea too and suggested to them it could be a winter project, one which I have started on.  Notice I haven't said completed!  They both said how they had so many certificates, articles and photos but never did much with them.

We spent several days, twice now to gather information, sort through details with a close friend of Andrew's as we say farewell to the last chapter of his life.  One that, despite many years of terrible pain and suffering, was well lived with a heart as big as his larger than life character.  Anyone reading this who knew Andy would heartily agree.

Take care, Rest in Peace and God Speed.

Lots of love and hugs,
Liz

dobbsjones@gmail.com

"Prayers wrapped in faith and sent with love are the greatest gifts we can receive."



Tuesday, 15 May 2018

A Break - of Good News...

It's 7:30 on this delightful end of a day which started with pouring rain, turned into a light drizzle, warm almost, to bright sunshine this afternoon and even now.  It's these kind of days we can imprint on the hard drive of our brain to recall in mid February.  Let's all take Kodak moments in our minds to ease the challenges sure to come our way in the coming future; it might makes things a little easier to deal with.

Last Tuesday we reported to the Oncology Clinic for the first appointment of the day.  We being myself of course, Mike and our loyal and dear friend Tess, a retired nurse and our translator as needed.  She has faithfully followed and even led me to appointments with doctors, clinics and treatment, sitting through treatments keeping my spirits up or sitting quietly when and as needed. The true qualities of a good nurse.  After the usual discussion with and examination by a Medical Student, Dr. B. arrived to share the results of the Cat Scan from May 3rd.  

Bottom line of the report, last sentence:  'No evidence of progression.'  Also, the CA125 blood test which topped out at the beginning of this adventure at over 1600, is now down to 66.  Yes you read that right - 66. (Normal healthy person is about 35).   We discussed options of remaining on chemo, as some people are frightened of knowing they have cancer and not 'doing anything about it'.  Well I've been told more than once I'm not medically curable so am not expecting it to simply go away without some divine miracle.  If the chemo has done it's job, it clearly has yet again, then we all agreed with the results we have in hand, let's return to 'Watchful Waiting'.  Dr. B. was very clear.  It is anyone's guess as to when things might act up again.  It could be six weeks, six months, or much longer but no one knows.  By taking a break from the chemo, it remains a tool for future consideration if and when needed.  Sounds like a plan to me and as the doc suggested, we have better things to do with our time than to be scheduling our lives around medical appointments.  We agree.

Oh, you know that clinical trial I started writing about last August or so?  The one my doctors were so excited about and had everything in order to start in Kingston as a satellite?  It still hasn't opened!  While it might sound frustrating to some, I'm actually relieved.  Why?  Because it not opening yet means it is still out ahead of us as another possible tool in our box to fix things up again sometime in the future.

On top of all that, I took my last hydromorphone capsule on the morning of my appointment! Yay.  Dr. B. started the discussion wanting to confirm I'd actually weaned off the stuff.  It was wonderful to say I'd taken the last one only that morning.  Even better was to flip back the page in my medical journal to say on April 10th he'd suggested I keep reducing and try to get off it!  Since then though, even though I'd only gone down from 3 mg. once a day to zero, the past week has had its share of withdrawal consisting of a sort of malaise, fatigue and restlessness at night.  I can report being off the narcotic I no longer sleep for 10-12 hours a night, often with a nap during the day.  I'm feeling much less 'snowed under', my mind is clearer, and I can rely on Mother Nature for 'evacuation' rather than having to rely on laxatives.  (It's true and a vitally important function.  Trust me on that one if you've never experienced problems lol) For the past week I've been relying on 1-3 Extra Strength Tylenol to deal with my recurring back pain.  Oh if only I could have some Advil (Ibuprofen) but not so being on blood thinners.

At the end of our appointment, the medical staff had left and as we were gathering our things to leave, Tess pointed something out on the covered windows.  We looked around and could not identify anything which could possibly be creating the reflection we were seeing.  I also happened to be sitting at the end of the reflection during my appointment.  Here it is:



Imagine that - sitting at the end of a rainbow when getting a good medical report!  God is good!

Being someone who has difficulty doing one thing at a time, I've also embarked on the physio, massage and continued pool workouts to contend with my back issues.  Hands on physio, coupled with massage while weaning of a narcotic leaves me wondering a little bit as to what my baseline for pain is right now.  It's hard to say.  This week I'm only doing the pool and trying mainly to stretch out those muscles that are wonky as a result of the fusion in a big part of my spine.

An appointment with my family doc tomorrow will assess whether an x-ray would be in order to determine if the degenerative disc disease has advanced (arthritis in our spine which I believe we all have), whether I should consider getting a prescription for a stronger pain med in the non narcotic field (Tramacet which I've used before with reasonable results) and ask if she has any additional recommendations to ease what can often be a constant discomfort.

Well this has been the longest medical update in a very long time, but hopefully useful information for anyone who has health issues themselves or wonder what comes along with the dreaded diagnoses of 'The Big C'.  As I mentioned last time, think of it becoming a chronic illness which is probably being researched more than any other disease on the planet meaning advances are being made all the time in terms of treatment and care.  One thing I didn't mention last time about ringing the bell at the end of treatment.  Someone told me it's actually often referred to as the Bell of Hope.  I'd not heard that before and knowing that tidbit helped me understand the importance of giving it a good ring.

I've been involved in doing what I call 'good things' these past couple of weeks, especially related to my newly referenced ministry of being in contact with friends and acquaintances .  Having said that I have one call I have not returned for no good reason and just have to do it.  I'm not sure why it is, we sometimes get hung up on such simple things.  One thing I've noticed though, by not having too much on the go this week is how I've been keeping busier than might be good for me from a healing perspective.  This is one of the biggest adjustments to living with a chronic illness.  You can't just push on, work through it, pick yourself up by the bootstraps.  No, no, no, hard as I'm trying I don't think I've been listening to my body as much as I need to.  

One intriguing visit is having tea one morning last week with someone I'd never met before.  I'd heard of this person through my son and his wife from a dinner party they'd both attended.  The similarities were such that my son thought it would be a good idea for us to connect.  I learned she works full time caring for the Sisters at Heathfield who have Alzheimer's and of course I have more than one dear friend who I continue to keep in contact with there.  The amazing thing she shared with me is her charity work.  Ten years ago, she was on a humanitarian trip and ended up spending 3 months in Kenya.  Since that time she has returned every years, sometimes for 3 months but mostly for a couple of weeks each February.  She has, single handedly, with the help of local residents, built a school, opened a Women's Empowerment Centre, set up a clean water filtration system and much more than I can remember.  Each year she goes with the view of scoping out the next project, then costing it out, coming back home, and, in her spare time fundraises for the costs of the project(s).  She does not charge so much as a postage stamp to her charity account with is called Kenya Help, but bears all administrative costs personally in order to ensure every donor dollar is spent on building the infrastructure in 'her' village in Kenya.  I was absolutely spell bound by her passion, organization, thoroughness, and boundless energy.  It has certainly left a lasting impression on me and I look forward to our next visit.

What I gleaned from our conversation was how any one of us, given the right calling, can do so much more than we could ever imagine (her words to me) with our God given skills and talents.  Having worked in a large local charity I kept wondering how in the world she could do all and everything herself.  She does receive administrative support from another charity CanAssist, through a local physician who has also spent countless days and weeks in Africa.  Not only does she do the fundraising, she develops the actual charitable and humanitarian projects and, with some help from others, manages to continue to develop the infrastructure for the folks who have so little.

If you are the least bit intrigued by this story feel free to browse her website at www.kenyahelp.ca.

Before I go, just want to let you know about the mental reframing I've done about that long, planting row at the back of our house.  After scouting out a couple of plant places I realized they were selling perennials I was yanking out as weeds.  Hmmm, I better rethink things.  Why not start with scoping out our own yard and moving those plants I refer to as weeds (only reason is they pop up anywhere and anytime they please) into the planting row?  No good reason I concluded so have made up a list of 'replanting requests' for Mike to undertake while plants are still moveable.  Today a friend dropped by to leave me part of her elephant hosta to take up residence as a new friend to the garden.  We know just where it will reside.  Off to the garden we go to play and reorganize.  

While plant stores and nurseries everywhere will be jammed with anxious shoppers this weekend I will be learning about Moses for the entire long weekend.  I've been doing much less in hopes of rebuilding my reserve of energy.  I'll let you know how I made out next post.  Until then,

Take care and God Bless,
Hugs,
Liz

dobbsjones@gmail.com

"Prayers wrapped in faith and sent with love are the greatest gifts we can receive."