Saturday, 30 November 2013

The Urge to Purge or Clearing Out with a Sense of Purpose

Off to Hotel Dieu we went on Thursday for another cat scan to determine the effectiveness of the latest doubling of meds to try to stop the growth of cells in my liver.

One has the joy of drinking what tastes like a glass of water full of metal over the course of 45 minutes although I found that not breathing while drinking seems to stave off the taste.  The follow up appointment to review the results is on December 10th and I'm surprised at how much calmer I am this time than in October.  I suppose that's because the last time, which was really the first follow up to treatment for my liver was a sort of milestone for me mentally and emotionally.  I had it built up in my mind as a 'life and death' moment in time when in reality it was just the next step on the path of dealing with this illness.

It seems as more time goes by, the less fearful I become and more accepting of whatever is going to be.  More importantly, if I can hang onto the faith and trust that has been building, the sense of adventure is heightened.  None of us knows what the future holds for us and for the most part thank goodness we don't!  It's so much easier to wake up in the morning and have a conversation with God to invite today's adventure in and remain confident that whatever happens is for the greatest good of all concerned.

Mike has discarded his cane this week and his six week check up post hip re-surfacing was good news.  The infection was caught in time with antibiotics which are now complete, there is no need for further intervention and he is well along in his recovery.  Given the physical nature of his job - outside all the time slinging ladders and climbing poles and hauling equipment - leaves no room for 'light duties' so he has to be fully recovered before returning to work.

Now on to the topic at hand, the urge to purge!  It seems a natural reaction to a serious illness, to feel the need to get one's affairs in order, review things done and undone and take steps toward a sense of completion.

As my energy levels allowed, I started to 'go through stuff', looking at all things through the lens of 'the spirit of poverty'.  For a long time now I had difficulty reconciling the materialism of our world with the instruction Jesus gave his followers, 'Sell your things, give the money to the poor and follow me'.  Today's society somehow doesn't accommodate that image but if one looks more closely we can certainly adapt to our own circumstances.  After all, truly how many sets of wine glasses do we need?

How many winter coats, boots, shoes and clothing of all types do we really wear?  After going through clothes, did I go through the house in an organized fashion?  Oh no, let's start going through this cupboard and when in another room, pull apart that dresser, and in a third place, empty that closet.  Hence the house was in a state of total disarray when a friend came to collect a large assortment of glass and old windows for glass art.  Hard as I tried to keep us contained in the living room, she asked about the room upstairs - oh no - the worst room yet!  Well up we went and in the midst of admiring the hardwood floor, she asked if 'that' was a treadle sewing machine (covered in dust as it had just been brought up from the basement to replace another sewing machine that was sent to Bibles for Missions). Yes I replied to which a follow up question by her partner was 'Does it work'.  Me thinking of course, 'Do they ever not work'?  Then the magic unfolds:  He tells us how his parents are trying to help an Amish family in central New York State who have 12 children and no electricity where the mom wants to sew clothes for the kids.  I looked at them, at the intricate, elaborate design on the sewing machine cabinet, back at them and offered it to them.

Of course there was the usual discussion about how much and when and so forth.  If they were interested, the machine had to go to them.  Over the next couple of weeks this couple visited and delivered the machine to wide eyed faces of several young Amish boys who were dispatched to the barn for a certain piece of something required to get it going.  In a matter of minutes they had it fully functioning.  When asked what we wanted for the piece, they replied 'Prayers' and so in addition to that, our friends delivered a loaf of Amish bread.

How we felt after that experience is such that one cannot buy that kind of joy.  Several of us had the privilege of being used to improve the lives of others in a providential way that likely would never have happened had my adventures in prayer and medicine not come to pass.

We have had at least three other similar experiences, giving a Nativity set to a friend who had very specific objectives in mind - when offered, it was perfect.  She suggested I may want to keep it to which I replied "Of course I want to keep it - but I can't, it must come to you".  Again a deep seated sense of joy that cannot be measured.  In another case, during a casual conversation, offering a box of vinyl albums to someone who we didn't know at the time of offering, had overcome challenges through music.

How awesome is that!?

The only way I can describe the purging activity is that throughout, I had a sense of guidance.  My way of 'selling what I have and giving the money to the poor' was to choose an organization that aligns itself with that philosophy.  In doing so, we delivered literally truckloads of really good stuff that we know will help that organization achieve its goals of helping others.

The more I gave away, the more I looked for things to part with, becoming a cleansing experience in the process.

Next week includes reviewing and updating wills and powers of attorney, something everyone needs to do on a regular basis.  In preparation for this activity I have found the conversations with family warm and inviting, bringing questions, issues and concerns up that may otherwise not have been addressed.  It's almost like a game of chess, although I don't play chess so in some ways have no idea what I'm talking about, so maybe better to say it's like a game of strategy, to determine how one can be fair, equitable and responsible with one's affairs.  And again, how do we pass on our values and sense of purpose to the next generation.  I have long espoused the view that with whatever little I may have left at the end of my life, my only biological child doesn't need to get it all.  The greatest gift I can give him is the gift of philanthropy.

As a society we are wealthy beyond measure, and I believe we have a responsibility to educate the next generation on how to share what they have and receive with others.  Many are in situations that are not of their own making or choosing and so let's find a cause that resonates in our own hearts and direct our efforts accordingly.  We are entering the most giving time of year and so, with that in mind, let's all think about how we might share our abundance and receive immeasurable joy in return.

Until next time…….mid December will bring the results of the latest scan and the next page in the Adventures in Prayer and Medicine.

God Bless…….

"Prayers wrapped in faith and sent with love are the greatest gifts we can receive".








Saturday, 16 November 2013

Half Way to Next Scan...


Not sure where time goes, especially now that over a year has passed since working full time.  It's quite amazing how much you can fit into a day, or not - something like the time fits the activity or the activity fits the time.  It's also likely partly why I do feel so relatively well, mostly because of the prayers I'd say, but partly because the demands on my time have shrunk so significantly.

I am going to try to post an update every couple of weeks or so as long as anyone is interested and as I feel inspired.  These last couple of weeks have been busier than usual, Mike developed a staff infection in his hip (hopefully under control since we tackled it right away) and his son may have a fracture in his ankle for the second time and is currently on crutches and an air cast!  The rest of the kids and grandkids are fine, thank you!

As you know if you've been following my blog, we doubled my meds again on October 15th and the only drawback is the fluid retention - 27 pounds weight gain and still counting!!!!  We're trying a 'water pill' even though it hasn't had great results with this type of condition.

I'm still not at the maximum dose so after the scan on November 28th, we will have a further consult to discuss next steps.  During my appointment this past Tuesday, we discussed how I'd like everyone on the care team to remain as positive as possible.  I know and understand the reality of the situation I'm in.  At any time cells can show up somewhere else and that over time they may not be able to arrest the growth of the cells in my liver.  But in the meantime, which is where we live every day, let's remain positive and hopeful.  I am functioning relatively normally within a whole new paradigm but we all have to cope with change - sometimes temporary, sometimes permanent, as it seems is the case with me, so the better we can adjust the better our lives will be.

Perhaps as a coping mechanism, I seem to be able to 'fast forward' to a place where I look back onto the current situation and say to myself, 'See there was nothing to worry about'.  It's a strange sensation but one that brings a sense of serenity to the whole experience.  Maybe it has something to do with the growing sense of trust in God (or whoever your higher power is) and truly letting go of the outcome.

In doing further self examination though, I've been able to identify that there are little things in life that I really do want to go a certain way and that if they don't I seem to wear a shield of irritation. That has led to a change in my daily conversations with God and His entourage, the many saints that can provide intervention.  Instead of just asking for 'Acceptance of God's Will for my Life with a Wise and Understanding Heart', it is now 'Total Acceptance of God's Will for All aspects of my Life (notice not just the health or medical side) with a Wise and Understanding heart'.  That way hopefully, the little things that drive me crazy can be morphed into an image of sand-like buffers that are wearing down the sharp edges of my being. It just makes things so much easier on a daily basis.

I've learned that the more specific I become in wanting certain outcomes, the greater the risk of disappointment.  When I focus on leaving things in God's hands, I seem to be able to cope much better. Oh, I really should mention one of the other side effects of increasing the meds - a temporary spike in mood swings!  While I've tried to relabel it 'Positive Mind Set', we still wonder if it's more like 'Pound Michael Syndrome' where every little thing becomes magnified exponentially for a period of time.  Once it settles down, we seem to get back on a more even keel again.

Thank you again to everyone who has continued to be supportive and helpful as we continue our Adventures!  I am contemplating the next post to be about the 'Urge to Purge' and the magical outcomes that we've experienced as a result.

And special thanks to my friend Jon Begg who tinkered with the blogsite to make it more attractive and reader friendly.  Now if I can just follow his lead.  Thanks Jon!  Until next time…….
God Bless…..