I promised myself I would update this blog twice a month, sort of like beginning and middle of the month, but couldn't help but post the surprising and welcome news from a week or so ago about no change in the cat scan. No change meaning that the cell growth has been arrested by the latest doubling of hormone medication (considered a form of oral chemotherapy). Since the cancer cells feed on estrogen, it is counteracted with progesterone and seems to be working.
Given the myriad of things that could be possible, the phone call from my oncologist was 'as good as it gets'. It makes the 30 pound weight gain due to fluid retention and ferocious appetite all worthwhile. A real lesson in humility that I will share in a future post. Last Tuesday we went in for the follow up visit and had a wonderful appointment with one of the newest members of the medical team.
We were encouraged to look forward, make plans, enjoy the Christmas season with family and friends and put aside the worry related to my illness.
At this point a follow up appointment in two months has been booked without the need for a further cat scan. I am to contact the team anytime I have any health concerns or feel 'unwell' for two weeks or longer. You might wonder why a full body scan is not routinely done when someone is diagnosed with cancer. In my case I learned, if I have the information correct, that gynaecological cancers have a fairly predictable pattern of spread making the exposure to radiation less than desirable for potentially no gain in knowledge. I've also learned that my case, surprise, surprise has been unusual from the very beginning. I didn't fit any of the markers for this type of cancer, had very few symptoms, so ladies, pay attention to your bodies and respond appropriately by seeking medical help and advocating for yourselves. The progression of the disease has also been unusual having resulted in a spontaneous fracture in my spine and spread to the liver. Fortunately for me, I have not felt 'sick' through most of my adventures making it much easier to cope with all the other concerns that go along with it.
As I've told many people lately, "If I didn't know better, I'd think I was well". That, I believe is a result of all the prayers, positive energy and good thoughts being sent our way. I had an interesting dialogue with my stepdaughter about the request in my mission statement for prayers (to quote 'if you pray, please pray, if you don't, please consider it). She is second year university and in response to my request, posted an invitation on her Facebook page to come to the blog site. My intention is that if even one person benefits from reading these posts, the whole experience has been worthwhile.
The reality of today's world came into much sharper focus when she explained to me that while many of her friends and school acquaintances 'liked' her message, many were uncomfortable with the notion of being asked to pray. I too have received feedback from a number of people who say they don't pray in any formal way, or believe in some other form of higher power, all of which is perfectly fine with me and I believe any positive energy radiates outward, and settles like fairy dust on everyone it passes by on the way to the intended recipient.
Having been raised a 'cradle Catholic', I often wonder how individuals deal with desperate situations in their lives if they have no anchor (or any belief system) to hang onto. Understand, that I am not fully versed on Catechism, or all the doctrines of the Catholic faith, have in many ways felt that old Catholic guilt about not knowing more about the faith of my heritage. I do know though, that it has always quietly been there for the asking and yes, only drawn on when absolutely needed, especially in the days of my life when I thought I could control and handle anything and everything. Now I wonder how do young people facing difficulty, fear, isolation and depression cope if they have never been taught some form of reliance on something or someone larger than themselves. Have these young people been forced into a life of self dependence without the sense of belonging to something greater? How do they go about finding meaning in a sometimes superficial world? Where do they turn when they have even a hint of curiosity about a belief system or faith? I don't have the answers, just lots of questions.
So at this very special time of year, I hope to remain attune to how others are feeling and coping with what can sometimes be a very stressful, sad and lonely time. We have been blessed to have Christmas come early and so I have no sense of urgency to run out and shop, but rather have an overriding sense of calm when I think 'big picture'. Who could possibly ask for more? A pause in what has been a period of adventures that we'd never plan for ourselves, but somehow have found a renewed sense of purpose in the midst of it.
Our kids and family will be hither and yon over Christmas, we will be close to home, relatively quiet, spending time with our brothers and families and remembering the reason for the season.
New years will bring kids, grandkids and the promise of an exciting year ahead, knowing we cannot nor should we know what the future brings - we might choose not to go there and miss all the blessings that go with it! Take care, Merry Christmas and, until next time, God Bless,
Liz
'Prayers wrapped in faith and sent with love are the greatest gifts we can receive'.
Monday, 16 December 2013
Saturday, 7 December 2013
Surprise News!
If you've been following our adventures, you know from my last post that we've undertaken a review of the necessary things in life like updating our wills and powers of attorney. We booked meetings this week and I was surprised at how much more emotional the experience was than I expected. It seems the reality of my health situation brings the whole planning process into much sharper focus. So up and down the activity and emotions went with Mike and Matt and I meeting with various professionals as I am adamant about everyone involved to be informed and aware of my wishes. No side deals, no surprises with the hope of transparency creating collaboration.
Wednesday was the meeting with the lawyer to sift through all the various possibilities that you are likely well aware of. It's almost like creating a big puzzle or maybe snakes and ladders huh? If this happens, you slide back to here or if that happens you climb up to there!
We walked out of that meeting with homework to do which includes lots of thinking and pondering about what our true values are, how we want to impact the lives of others and through prudent financial planning, how we hope to be remembered. If you're ever interested, look up the story of Alfred Nobel's accidental obituary. Part of my plan includes having my friend Judy help me write my life story as a leave behind for whatever future generations may come after me and have an interest in knowing more about their background. I believe it will be a good exercise in reflection of what's really important in life. Not having followed any life long passionate pursuits I sometimes wonder what I can say I've accomplished. In describing my interests, I tend to be a wind surfer, skipping from one thing to another rather than a scuba diver, delving deep into one area of activity. Neither is right, nor wrong, just different.
Wednesday afternoon brought a surprise phone call from my oncologist.
As you likely know from past posts, we doubled the meds in mid October, with a further scan scheduled for November 28th and a follow up for the results on December 10th. When Mike gave me the phone my heart sank, thinking oh boy, what could he be calling about. He stated the cat scan had been reviewed by he and his colleague, it is unchanged from the scan in October so it appears the meds have kicked in and arrested the growth of cells in my liver! Thanks be to God!!!! Happy dance all around. YAY!!!!!!
After hanging up the phone, I experienced an interesting reaction that I can only describe as 'relief exhaustion'. As much as I'd like to run into the streets and go house to house like Paul Revere, I managed only a few texts and emails, not even picking up the phone.
I will still go to my appointment on Tuesday, the 10th to discuss the plan from here but I do understand that if this level of treatment works, I can remain on it indefinitely albeit dealing with the side effects and getting used to the new roly poly me!
As we prepare for the Christmas season, I know our family will be offering special thanks for the medical care we've received over the past year, for God's work through their hands, and for the many hundreds of prayers that we've received that has kept us going over all these months. As I've said to people, I'm certain it's the prayers that have allowed me to continue to feel so well throughout the adventures.
At a time when many have no hope, may we all share in hope for a bright year ahead, letting each of our own internal lights shine, touching the lives of others however fleetingly and leaving a sense of warmth to be shared with everyone we come into contact with.
Until next time, may God's light shine upon you especially as the North Star prepares to line up and guide our lives toward peace and contentment.
Take care…….
Liz
"Prayers wrapped in faith and sent with love are the greatest gifts we can receive".
Wednesday was the meeting with the lawyer to sift through all the various possibilities that you are likely well aware of. It's almost like creating a big puzzle or maybe snakes and ladders huh? If this happens, you slide back to here or if that happens you climb up to there!
We walked out of that meeting with homework to do which includes lots of thinking and pondering about what our true values are, how we want to impact the lives of others and through prudent financial planning, how we hope to be remembered. If you're ever interested, look up the story of Alfred Nobel's accidental obituary. Part of my plan includes having my friend Judy help me write my life story as a leave behind for whatever future generations may come after me and have an interest in knowing more about their background. I believe it will be a good exercise in reflection of what's really important in life. Not having followed any life long passionate pursuits I sometimes wonder what I can say I've accomplished. In describing my interests, I tend to be a wind surfer, skipping from one thing to another rather than a scuba diver, delving deep into one area of activity. Neither is right, nor wrong, just different.
Wednesday afternoon brought a surprise phone call from my oncologist.
As you likely know from past posts, we doubled the meds in mid October, with a further scan scheduled for November 28th and a follow up for the results on December 10th. When Mike gave me the phone my heart sank, thinking oh boy, what could he be calling about. He stated the cat scan had been reviewed by he and his colleague, it is unchanged from the scan in October so it appears the meds have kicked in and arrested the growth of cells in my liver! Thanks be to God!!!! Happy dance all around. YAY!!!!!!
After hanging up the phone, I experienced an interesting reaction that I can only describe as 'relief exhaustion'. As much as I'd like to run into the streets and go house to house like Paul Revere, I managed only a few texts and emails, not even picking up the phone.
I will still go to my appointment on Tuesday, the 10th to discuss the plan from here but I do understand that if this level of treatment works, I can remain on it indefinitely albeit dealing with the side effects and getting used to the new roly poly me!
As we prepare for the Christmas season, I know our family will be offering special thanks for the medical care we've received over the past year, for God's work through their hands, and for the many hundreds of prayers that we've received that has kept us going over all these months. As I've said to people, I'm certain it's the prayers that have allowed me to continue to feel so well throughout the adventures.
At a time when many have no hope, may we all share in hope for a bright year ahead, letting each of our own internal lights shine, touching the lives of others however fleetingly and leaving a sense of warmth to be shared with everyone we come into contact with.
Until next time, may God's light shine upon you especially as the North Star prepares to line up and guide our lives toward peace and contentment.
Take care…….
Liz
"Prayers wrapped in faith and sent with love are the greatest gifts we can receive".
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